Little Brady Faith

Yep, that right. Brady’s gained 2 pounds in the 8 weeks she has been in the NICN. She now weighs 3 pounds 5 ounces. Now, I do remember that Brady weighed 1 pound 7 ounces when she was born, but she did lose a few ounces so that’s how she has already gained 2 pounds. I am so excited and you can tell how much she has grown. The changes in the last few weeks haven’t been really noticeable to me, but she is filling out. The easiest way to see her growth is when she has her clothes on. She’s starting to fill them out a little more. Read the rest of this entry »

I just wanted to let everyone know that Brady is getting better. The removed the IV and she is off of the antibiotics. She has also been relocated to Kanga’a Pocket which is the intermediate section of the NICN. We are very thankful she is in a room with a lot less beeping going on. She seems to be doing well, her oxygen saturation is pretty stable with a few dips every now and then. She has a specialist coming to see if they can figure out a way that Brady will successfully take a whole bottle. At times she doesn’t know to swallow which causes her to turn blue. We don’t want that. All in all she is doing much better and Erik and I thank each one of you for every prayer and thought!

I have to give a shout out to my friend Jordan for giving me the title of this blog. He put a note up on Facebook with the words to a song called “Be Still” and I needed the words to it this morning. It’s a song by StorySide B and is actually my MySpace song. I put it up about 2 weeks ago. I love the song and right now it really defines how I feel.

Brady being sick is really getting to me. It’s so hard to see her struggling in any way. She had to have another blood transfusion and they tried 7 times to get a vein before they had to put the IV in her head. She looks like some experiment gone wrong. They also had to go up on her oxygen AND she has a knot on her arm that is possibly more infection. It just seems like she is at the struggling up a hill and could make it to the top or fall to the bottom.

I have to admit sometimes it’s hard to see God through the pain, which is where I was this morning before I got a reminder from an unknowing friend. I see how God uses people to lift others up. I don’t know why Jordan decided to write this note, maybe God whispered in his ear. All I know is that seeing that song reminded me that God is God, and that he is there for me and never leaves me. The following is the chorus from the song I have been talking about. The words mean so much to me right now.

“Be Still”

When I feel like caving in
My heart my soul is wearing thin
I just want to give up
Nothing seems at all to add up
Can you hear me Lord?
My face is down upon the floor
It’s then you whisper in my ear
Be still and know I’m here

I promised to write a blog today on Brady’s condition so here I am. Brady is doing better. They continue to wean her off of the vapotherm so hopefully she will be off of it soon, although she did have one episode tonight of low oxygen. So back to Brady’s issue. Read the rest of this entry »

I will write a more in depth blog tomorrow, but I wanted to let everyone know that Brady is doing better. She was moved back to the critical section of the NICN due to something she is on called vapotherm. They will wean her off that and she will be able to go back to the intermediate section. Brady seems to be responding to her meds and I am thankful she is doing better. It’s been a long 2 days and I am glad they are over and Erik and I can sleep a little better. Anyway, I’ll get into more detail tomorrow when I am not about to fall off my stool.  Thank you for your prayers. They are felt!

Tonight Nikkie and I went to check on our little girl and the news wasn’t good. She’s actually gone in reverse and gotten a bit worse. As you may know she’s been having some episodes of apnea and bradycardia due to issues breathing. She was put on oxygen yesterday to help her get going with that. Today they had to increase that supply a bit because it’s gotten worse. This afternoon I noticed a big red area on her left shoulder blade and was confused as to what it may be. It was looked at by some nurses and doctors and they decided to run some labs just to be sure it wasn’t something bad. It turns out it may be just that…something bad. Read the rest of this entry »

Please pray for Brady. She will be having a blood transfusion today. Hopefully this will help her and she’ll be back to where she supposed to be sooner rather than later.

Yesterday was a good day, today was a bad day… Read the rest of this entry »

Yesterday was such a good day with Brady. I went for the first time at lunch and got to put one of her little outfits from her aunt Kayla on. It’s about 3 sizes too big, but she sure did look cute! My friend Abby got to come by and visit. We agreed that Brady looked like a turtle the way she was all wrapped up with her little head poking out. My cousin Kasey also got to visit, which was wonderful. I love sharing Brady which is why it’s going to be so hard not to when she leaves. Read the rest of this entry »

I called the NICN at 8 this morning to check on Brady. Her episode last night left me scared. She had a few more decets last night, but most of them were self correcting, which means she didn’t need any stimulating to get her levels higher. I think I forgot to mention on my previous post that if she continues to have trouble they will put her back on oxygen, which they haven’t done yet and hopefully they won’t have to. Read the rest of this entry »